Update

We heard from the specialist this afternoon regarding the preliminary results of the Amnio. There is good news! So far, the preliminary results have come back normal, meaning she does NOT have congenital defects, ie: down’s syndrome, trisomy 18, or trisomy 13, etc. this a great thing and an answer to prayer. Now we will wait until we get the full workup report, which, unfortunately, won’t be available for another 7 days. This report will give us details as to whether it is an infection like Parvo or CMV that is causing her to be sick, or whether they need to perform more testing to determine whether she has extreme anemia or something like that. Basically the full workup report will give us all kinds of good information, but it just takes forever to get.


For now, though, we know she is fine when it comes to her chromosomes and her DNA. We are so very grateful for this information. We still know that she is sick, but now we know that hopefully we can fix it and treat it appropriately in the womb.



Now we would like to ask you to please pray for us for patience, and that she stays put. My amniotic fluid is at such ridiculously high levels that the biggest fear right now is that my water breaks before we have the full report. They really want to know what they are working with before she is born. Because my fluid is so high, the doctors know I am at very high risk for having her prematurely, but we would rather have that not be until after we get the full set of information. In addition, if it is an infection or anemia they would rather treat her in the womb, rather than outside the womb (for instance, they can give her blood transfusions by inserting the appropriate “stuff” through my stomach into her in the womb for the infections and anemia, etc. and have her heal within me rather than add prematurity to that list of things to overcome).

So for now, we’ll continue to wait and hope that her hydrops (the main complication right now, and a serious one) does not get worse, and that her heart continues to keep pace with the stress and pressure she’s under now.